“I can’t thank them enough”

For Mike Kyriakides, John Taylor Hospice has been a source of support and friendship, helping him to feel ‘more at peace’ with his condition.

Mike, who lives in Kingstanding, was 65 years old when he was diagnosed with motor neurone disease (MND) – a progressive neurological condition that affects the brain and nerves. As his symptoms progressed, Mike needed additional support and he was referred to John Taylor Hospice.

“I’ve met some lovely people there and struck up quite a few friendships,” explains father-of-three and grandfather Mike. “It’s friendly, it’s relaxed and people there have a genuine interest in what you think and what you do. They try to help you at all times.”

As well as visiting the Living Well Centre once a week, John Taylor teams have been able to offer Mike physiotherapy, access to complementary therapies and support at home from a clinical nurse specialist and occupational therapist. “They’ve been absolutely brilliant at getting equipment and advising me how to cope with the MND,” adds Mike. “I can’t thank them enough.”

Receiving this care and support has made such a difference to Mike that he chose to share his story with John Taylor Hospice on film – to help raise awareness and understanding of MND and highlight the need to widen access to the vital support that hospices provide for families across the West Midlands.

“I’m aware now how difficult the situation is because there’s no cure,” says Mike, 67. “Losing my independence is what affected me most at the beginning but, with extra help, I’m learning how to cope with it a bit better. The hospice has helped me a lot in realising and recognising the road I’m on and to feel more at peace with what is happening.​”

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What our patients think

“The care was second to none”

“At such a heartbreaking and difficult time, the nurses and care assistants knew exactly what to do and to say – we’d have been lost without them. The care they provided for my beautiful wife was second to none and I’ll be forever grateful.”

Roger Perks

“Nothing is too much trouble”

“I can’t thank hospice teams enough. From fitting grab rails in my house and ordering a reclining bed, reviewing of all my medication, providing me with new medical equipment and even helping to organise domestic help for us at home – they’ve covered everything but are always willing to do even more.”

Jackie Bannister

“I don’t know where I’d be without them”

“The support I get is truly is invaluable and I honestly don’t know where I’d be without them. I’m able to talk openly about my illness and ask for advice and support if I need it. I’ve made some incredible friends and the hospice is a very special place full of laughter and kindness. “

Liz Warren

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